I’ve been trying to write for days, but I can’t. Just now, I made myself open a new Google doc despite the fact that, really, I just want to lay down.
Again.
This morning I actually left the house for coffee with a friend and then, because my “charge” was under the watchful eye of Mr. Rugby, we did a little retail therapy at Marshalls. It was fun. I found a very pretty jacket in my preferred color of no color. (You know, cream.) And then I completely ran out of gas. Hit the wall, as they say.
So, I came home and laid down on Mr. Rugby’s bed.
Mr. Rugby, Mr. Happy to Be in His House and Not the Big House and I watched a movie. The three of us snuggled up in bed with one of the cats and Tom Cruise, who was busy saving the world from an alien invasion in “Edge of Tomorrow.” The movie was good. The time spent relaxing with my sons was the best.
When the credits rolled, I thought I’d worked up some energy so I got up. I thought wrong.
Mr. Rugby’s bed is calling my name right now.
I should be thinking about starting dinner. I should be getting organized for tomorrow; it’s going to be another crazy work week made crazier by the almost daily appointments Mr. Happy to Be in His House and Not the Big House and I have. Therapy. Court. His once-a-month, in-person check in. So much driving. So many hours away from my desk. So many people looking for me while I’m away from my desk.
It’s so stressful. Two jobs and my son, my third job. And I still haven’t figured out how I’m getting rich this year.
I need to do that.
If I can figure out how to hit the mother lode, I can hire a driver for my charge. I can afford a “stunt mom” to attend check-ins and court appearances. (Maybe she’d even be willing to pull “listening duty” a couple times a week!) I can get a personal assistant whose sole focus would be following up on the Medicaid and Medicaid Waiver applications we’ve submitted that are languishing somewhere in Government Bureaucracy Land.
Yes, I need to turn my attention to getting rich.
But first I need a nap.
Thank you so much for subscribing to Life On The Inside. I appreciate you being here with me. If you’d like to read parts 1-30, you can do so here.
also, just a note to the world that there is a sibling support group on facebook, private group and some even post anonymously. even to read about other siblings lives and ups and downs are helpful. its called "Sibnet on facebook" there is a sib20 group on facebook as well. Mr Rugby might be interested in that. There is a website with resources -- sibling support.org books by adult sibs are there also, even tho it looks like mostly for younger siblings.
Susan, you need to get in touch with your son’s congressional representative, who I believe is Abigail Spanberger. She can prod Social Security to get his Medicaid application and waiver out of limbo. The late great Donald McEachin did the same for my disability application. It can all be done online.